kingswood Polak
Without music life would be a mistake
Joined: May 2014
Posts: 10,255 
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Post by kingswood Polak on May 25, 2017 18:32:18 GMT
Thanks Admin. Very cool of you to unpin. That's great service for you |
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kingswood Polak
Without music life would be a mistake
Joined: May 2014
Posts: 10,255
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Post by kingswood Polak on May 26, 2017 22:31:51 GMT
Am off to London next week for my first consult and hopefully a timescale. I can leave the page another 30 days after its end so I think I will let it run. We shall see if it helps
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kingswood Polak
Without music life would be a mistake
Joined: May 2014
Posts: 10,255
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Post by kingswood Polak on May 27, 2017 21:43:23 GMT
For anyone interested the independent porsche enthusiasts club are doing a meet and bucket collection.
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kingswood Polak
Without music life would be a mistake
Joined: May 2014
Posts: 10,255
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Post by kingswood Polak on May 29, 2017 17:09:51 GMT
Just wanted to say it saddens me that some will donate then say wish it were more, please don't feel shamed or embarrassed as you are all brilliant in helping. I was ashamed & embarrassed in making the page as it meant letting down the mask and opening up. I no longer have to be the great pretender, pretending that I'm doing well. It's been a liberating experience & I can live without the pretence now.
Thanks to all the anonymous donations. Big man hugs to all. Thank you all
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kingswood Polak
Without music life would be a mistake
Joined: May 2014
Posts: 10,255
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Post by kingswood Polak on May 30, 2017 20:09:26 GMT
Please guys, do say if you want this ended. I feel I'm taking up space & talking to myself and it's bad enough me talking to the cats.
Had a very bad day today. 104 fever. Coughing blood and head banging like it's been hit with hammers. I'm only popping in and out as it really hurts to see the screen. Doc came and gave injection and a drip. Am hoping we can avoid admission to hospital again.
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kingswood Polak
Without music life would be a mistake
Joined: May 2014
Posts: 10,255
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Post by kingswood Polak on Jun 2, 2017 11:04:19 GMT
Just a quick bump to say it looks like I have 6 days left of the time given. Does anyone know if I can extend this ? I tried to and thought I had done it successfully but I now wonder if my delaying making it live for nearly a month has limited the time allowed ?
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kingswood Polak
Without music life would be a mistake
Joined: May 2014
Posts: 10,255
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Post by kingswood Polak on Jun 4, 2017 4:41:03 GMT
If anyone is reading this then please give your opinion on whether I should carry it on as I've been given the offer to let it run for 30 days after the 4 days are over.
As I see it, the donations have basically stopped so I'm guessing people have had enough of it.
Though it didn't get close, I am still very grateful for the donations as it will make it that much less to pay back.
Thanks in advance
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kingswood Polak
Without music life would be a mistake
Joined: May 2014
Posts: 10,255
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Post by kingswood Polak on Jun 7, 2017 7:16:12 GMT
Anyone reading at all ?
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Post by o2o2bo2ba on Jun 7, 2017 8:58:04 GMT
I am Kp and always have been. As I am as concerned as the next person.
Just didn't see it my place to say or comment either way, that's all.
I guess my stance is, whatever you feel is best for you, I'll support.
I would understand either way.
Hope that helps and if I can in any other capacity, I'll try my best, just say..
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kingswood Polak
Without music life would be a mistake
Joined: May 2014
Posts: 10,255
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Post by kingswood Polak on Jun 7, 2017 16:29:22 GMT
I am Kp and always have been. As I am as concerned as the next person. Just didn't see it my place to say or comment either way, that's all. I guess my stance is, whatever you feel is best for you, I'll support. I would understand either way. Hope that helps and if I can in any other capacity, I'll try my best, just say.. Thanks fella. I know it's summer now and traffic is hugely down. It's nice just to get someone else post. Thanks again |
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kingswood Polak
Without music life would be a mistake
Joined: May 2014
Posts: 10,255
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Post by kingswood Polak on Jun 9, 2017 9:03:17 GMT
Had a very bad attack yesterday. Coughing lots of blood and my kidneys are showing both protein & blood. Is anyone reading this ? I was told, via a twitter message, that people think I am blagging. Please be honest & tell me if you feel this way and no hard feelings. I'm both sad & upset if true but I can't allow that to stop me. I have a very real battle to come and I'd rather know who is with me. Of course it affects me when I hear this.
Feel free to be blunt. I really need to know the truth.
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kingswood Polak
Without music life would be a mistake
Joined: May 2014
Posts: 10,255
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Post by kingswood Polak on Jun 9, 2017 9:35:16 GMT
This is a friend I found in USA and who has the disease. Please watch it if you feel like it. It gives an insight into how this damned disease affects and he too looks ok. I guess invisible disease makes people believe I am ok but I assure you I am far from it and hacking up a lot,of blood today, that was a after a mild attack.
Anyway, here it is
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mjhgas
Joined: May 2014
Posts: 277
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Post by mjhgas on Jun 9, 2017 10:37:21 GMT
Had a very bad attack yesterday. Coughing lots of blood and my kidneys are showing both protein & blood. Is anyone reading this ? I was told, via a twitter message, that people think I am blagging. Please be honest & tell me if you feel this way and no hard feelings. I'm both sad & upset if true but I can't allow that to stop me. I have a very real battle to come and I'd rather know who is with me. Of course it affects me when I hear this. Feel free to be blunt. I really need to know the truth.
KP - name them! For the record and having corresponded with you I'm in no doubt that this is real! Perhaps provide an update of what other efforts you are making to raise the funds - have you had any luck with what we emailed about?
If this is an attempt to blag any thing then you'd be daft to try it for £2,500! Sad that people can think along these lines!
MH.
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kingswood Polak
Without music life would be a mistake
Joined: May 2014
Posts: 10,255
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Post by kingswood Polak on Jun 9, 2017 20:50:50 GMT
Had a very bad attack yesterday. Coughing lots of blood and my kidneys are showing both protein & blood. Is anyone reading this ? I was told, via a twitter message, that people think I am blagging. Please be honest & tell me if you feel this way and no hard feelings. I'm both sad & upset if true but I can't allow that to stop me. I have a very real battle to come and I'd rather know who is with me. Of course it affects me when I hear this. Feel free to be blunt. I really need to know the truth.
KP - name them! For the record and having corresponded with you I'm in no doubt that this is real! Perhaps provide an update of what other efforts you are making to raise the funds - have you had any luck with what we emailed about?
If this is an attempt to blag any thing then you'd be daft to try it for £2,500! Sad that people can think along these lines!
MH.
No, I am not going to name or get into it. It just makes things go negative and it's the last thing I need right now. I've got some good people making efforts on my behalf and I am so pleasantly surprised by this. I've been selling all of the stuff and possessions that i don't need or use and that includes my omega constellation and I loved that watch but my health is more important than possessions. I have realised that the person who said this actually got what he wanted and that was a rise and I will not be doing anymore of it. My other option and looks like I will have to do it is to take the offer from a friend which is he lends me the balance and he gets a very good return when I am well enough to sell the house. I am just 17 months too young for anyone to do equity release. I will do what I have to do. I've never been a quitter and I ain't going to quit now. Can you remind me what email you sent please ? Thanks |
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kingswood Polak
Without music life would be a mistake
Joined: May 2014
Posts: 10,255
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Post by kingswood Polak on Jun 14, 2017 17:23:06 GMT
Had hospital today. Amazed at the difference in the way a private patient is tread. Even had psychiatric liason there, to make sure I am in the right headspace when the treatment starts. Feeling more hopeful todat
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kingswood Polak
Without music life would be a mistake
Joined: May 2014
Posts: 10,255
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Post by kingswood Polak on Jun 18, 2017 12:49:31 GMT
From last Thursday
Had an excellent consult today and even had psychiatric liason to make sure I am in the right frame of mind when the treatment starts. I actually left there today feeling hopeful. It's going to be tough as each infusion will be 12 hours long and I will wiped out after. I really don't have a choice now. Hopefully it will work out. I will owe a lot of money but at least I will hopefully be here to do so
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kingswood Polak
Without music life would be a mistake
Joined: May 2014
Posts: 10,255
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Post by kingswood Polak on Jun 18, 2017 20:14:44 GMT
Thank you very much @russgas. I have now amended the amlint needed to reflect treatment now being in the UK. Hopefully that will make things clearer for those who don't click on the link and read the page and comments. Thanks to all
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kingswood Polak
Without music life would be a mistake
Joined: May 2014
Posts: 10,255
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Post by kingswood Polak on Jun 18, 2017 20:15:09 GMT
@russgas aka russgas
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kingswood Polak
Without music life would be a mistake
Joined: May 2014
Posts: 10,255
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Post by kingswood Polak on Jun 22, 2017 20:15:33 GMT
Bad post
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Post by o2o2bo2ba on Jun 22, 2017 21:27:12 GMT
Don't know the time frame, Kp, but why not give it a while and contact them again gently when it feels right?
Don't give up, bud.
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